National and Community Resources

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Autism Glass Project

National

The Autism Glass Project seeks to provide a more immediate supplement to therapy by providing a mobile at-home therapeutic learning system, codesigned by children and families with autism, that can integrate seamlessly into their daily lives outside of the clinical setting.

Interested in participating?

We’re looking to recruit children who: ü are between the ages of 6-12 years old, ü have a clinical diagnosis of Autism Spectrum Disorder, ü and receive ABA therapy at least twice per week. Sounds like your child? Here are the next steps…

1. Let your agency know that you are interested in participating.
2. Visit autismglass.stanford.edu to sign up.
3. Complete the Autism Glass screening and eligibility questionnaire at autismglassrecruitment.stanford.edu.
4. Have questions? Email the Autism Glass team at autismglass.stanford.edu or call them at 650-497-9214!

The UC Irvine Family Lab Research Study

Local

The UC Irvine Family Lab is conducting a research study examining participation in adaptive sports teams (designed for children with special needs) and child well-being outcomes in children with Autism Spectrum Disorder.

Families are eligible to participate in this study if:

 Your child has been clinically diagnosed with Autism Spectrum Disorder

 Your child is between the ages of 8 and 11 years old

 Your child is currently enrolled in an organized sports team (i.e., soccer, softball, basketball, football, hockey, etc.) that is adaptive (specially designed for children with special needs)

 The child must NOT be currently enrolled in any martial arts classes

Participation in the study involves:

1) Parent completion of an online questionnaire (~1 hour)

2) Two visits to UC Irvine for diagnostic and social & cognitive assessments of child (~1.5 hours each, separated by ~13 weeks)

3) Continued participation in organized sports team between the two UCI visits

Families will be compensated up to $50 for their participation in the questionnaires and visits to the university

To receive more information, please submit your contact information to our secure online interest form (scan QR code or visit link) and a member of our research team will call you with more information:

Phone: (949) 824-7441

Email: families@uci.edu

For questions, please contact the Lead Researcher:

Janice Phung, M.A. (jnphung@uci.edu); Faculty Sponsor:

Wendy Goldberg, Ph.D.

UCI IRB Approved: 11-24-2015 | APP # 9023 | HS# 2015-2312 1 of 1

Social Skills Training with Dogs

Local

Do you suspect or does your child have an Autism Spectrum Disorder? Are you interested in social skills training with dogs to help your child?

The University of California at Irvine under Dr. Sabrina Schuck is conducting a new study for children who have or may have ASD. In this study, children will have the opportunity to engage in an interactive environment, which will promote their social skills, self-esteem, and self‐regulation skills. This study involves weekly social skills training sessions with experienced and certified therapy dogsIf you are interested, you and your child may be eligible to participate.

The first study session will be this Thursday July 14th. Participants will meet every Thursday for 6 weeks, ending on August 18th.

 Children between the ages of 7 and 9 who have or may have ASD

 6 Social Skills Training sessions and 6 Behavioral Parent Training sessions are available at no cost to you

Elopement Patterns & Caregiver Strategies Research Study

National

A 2012 Interactive Autism Network study of more than 1,200 families with children between the ages of 4 and 17 found that parents reported that nearly half of children with ASD had attempted to elope at least once. The study also found that the risk for elopement increased with the severity of autism. Nearly half of those parents said that their child eloped with the intention to go somewhere or do something, while only a tenth reported that their child eloped because he/she was confused, sad and lost.1

IAN Research is now delving deeper into the elopement and wandering patterns of children and dependent adults with autism, and looking at the prevention strategies that caregivers implement, in ourElopement Patterns and Caregiver Strategies Research Study.

WHO MAY PARTICIPATE?

  • All parents of children with ASD ages 4 and older are eligible to participate
  • Legally authorized representatives of adults with ASD ages 18 and older

Eligibility does not require a history of elopement and we encourage all families to participate.

Those who complete the survey will be entered into a drawing for one of ten $100 Amazon gift cards.  See the attachment for additional information.

Anxiety Research Study (No family history of ASD’s)

Local

May 6, 2016 Announcement

The UCLA Center for Autism Research and Treatment is conducting a new Study: Sensory over-responsivity (SOR) is a highly prevalent feature of autism spectrum disorders (ASD): an estimated 50-75% of children with ASD experience SOR, ranging from general discomfort to distress in loud or complex environments. SOR appears to be linked with increased anxiety in autism, and parents report that SOR symptoms are among the most disruptive aspects of everyday life. It is unknown whether anxiety and SOR are linked and what biological mechanisms may cause SOR and anxiety in ASD and whether these systems are specific only to ASD. This study will use brain imaging (MRI) and physiological measurements (e.g., heart rate) to determine how children with anxiety, ASD, and non-affected children respond to sensory stimuli with the goal of determining how these systems are alike and how they differ.

Participants will receive $75 for their participation and receive a picture of their brain! We are currently looking for children between the ages of 8 and 17, who have a clinically diagnosed anxiety disorder, and have no family history of ASD.

If you are interested in hearing more about the study, please feel free to contact our Research Coordinator Hilary Bowman at 310-825-5326 at anytime. We would love to chat on the phone to discuss the study more and make sure they would qualify.

Autism in the Workplace Survey

Local, National

Take our survey and let your voice be heard! We are looking for young adults (16-30 years old) with Autism and/or their family members/caregivers/guardians to complete our survey.

The Thompson Policy Institute on Disability and Autism at Chapman University is interested in your opinions on the opportunities and services available for young adults with autism in the workplace. Your responses will help us to better understand and advocate for policy changes to support young adults with autism transition into the workplace.

The survey should take approximately 10-20 minutes to complete. This survey is available in Spanish. If you would like to receive a copy of the results, or if you have any questions, please email us at tpi@chapman.edu. To take the survey:

1. Email tpi@chapman.eduand let us know you would like to complete the survey- we will send you the link OR 2. Visit this page to complete the survey: https://chapmanu.co1.qualtrics.com/SE/?SID=SV_bC5TkzyvVBizJzf Please Complete by March 31st, 2016

Social Participation Research Study

Local, National A research study on 3-year olds with developmental delays by Chana Hiranaka, OTR/L. Parents fill out three surveys either by mail or by phone. After completing the surveys, parents receive a $50 gift card. Parents can be either English or Spanish speaking to participate, and their children must be 3 years old with a developmental delay. The study has IRB approval through Rocky Mountain University. Interested parents can call 818-645-7074 or email socialparticipationstudy@gmail.com

UCLA Treatment Study for Youth with Autism and Anxiety

Local Children ages 8-13 who have ASD and significant anxiety, shyness, or worry are encouraged to participate in a free trial of cognitive behavioral therapy. If qualified, families will receive individual therapy weekly for 16 weeks at UCLA. This study ends June 17, 2016. Parents of potentially eligible children will be screened over the phone; this will last approximately 15 to 20 minutes. Children selected for the study will have approximately a 90% chance of being assigned to participate in one of two therapy programs. One program is a standard cognitive behavioral therapy program, which has been established as the gold standard for treating anxiety in youth without ASD. The other program is based on a modified cognitive- behavioral therapy program that has been developed for children with ASD. There is approximately a 10% chance of being placed on a waitlist for 16 weeks (you are allowed to participate in any other treatment while on the waitlist) followed by your choice for inclusion in either the standard or modified cognitive behavioral therapy. Participants are required to maintain a stable medication regimen during participation (if they are already taking medication). Treatment sessions are held throughout the week and scheduled on an individual basis with the participating family and their assigned therapist. Interested families should contact us at 310-882-0537 or at ucla.autism.anxiety@gmail.com

Research Study: Wellness Factors Related to Social Media Use in Adults with ASD

Local, National, International
Research Participant Recruitment from October 7, 2015 to September 27, 2016 Seeking Adults (18+) with autism spectrum disorder who have access to social media or the internet and are able to complete an online 10 to 30 minute survey independently. The recruitment goal is 120 participants. https://www.surveymonkey.com/r/8KQWGNZ This study is designed to learn the relationship between social media use and happiness as well as life satisfaction in a population of adults with autism spectrum disorders. You do not have to use social media to participate; you only need to have the ability to use social media if you choose to do so.
This survey will take between 10 to 30 minutes total to complete. After completion of the anonymous survey, you will have the option to access another survey where you may provide a name and an address for entry into the apple watch sport lottery. Please see attached Flyer. A lottery for an Apple Watch Sport will follow the survey.
This research is being conducted as part of the requirements for a Ph.D. in psychology at Fielding Graduate University by Deborah Ward. Please feel free to contact me with any questions or concerns at dward@email.fielding.edu. Thank you for your interest. Fielding Graduate University Institutional Review Board Approval No. 15-0901
 

UCI Study for Moms, Dads and Teens

Local

Are You A Parent Of A Teenager?

The University of California, Irvine Department of Psychology & Social Behavior invites moms, dads, & teens to participate in a study examining parent-teen relationships.

You and your teen may be eligible to participate in this study if your teen is 13 to 17 years old AND either

A. has been diagnosed with an autism spectrum disorder (autism, Asperger’s syndrome, PDD-NOS) (high functioning ASD)

OR

B. does not have an immediate family history of a developmental disorder (typically developing)

Participation involves:
· ~ 1 ½ hour home visit (teen developmental assessments; teen, mom, and dad relationship questionnaires)
· ~10 minutes daily diary for 7 days (teen and mom questionnaires)

There is No Cost for participating.

Your family will be compensated with a $35 gift card for complete participation.

Please contact the UCI Family Lab at (949) 824-7441 or families@uci.edu

Maryam Abdullah, M.A.
Lead Researcher

Wendy Goldberg, Ph.D.
Faculty Sponsor