National and Community Resources

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Parenting on the Spectrum Study (in-home study)

Local

We are recruiting research participants for an in-home study for mothers of children between the ages of 3 through 7 who have been diagnosed with autism spectrum disorders (ASD). We will ask parents about parenthood and participants will be given the opportunity to provide cheek swabs for DNA samples. Families can receive up to $90 for completing home visits. Enroll at https://goo.gl/Jg8MsF and click that you are interested in home visits. Email questions to thriveasdstudy@gmail.com. Thank you!

Parenting on the Spectrum Study (online study)

National

We are currently recruiting research participants for an online study for mothers of children between the ages of 3 through 7 who have been diagnosed with autism spectrum disorders (ASD). Participants who complete the study as indicated on the consent form will receive $20. The study must be completed in one sitting and takes approximately 1-hour to complete. Please use this link to participate: https://goo.gl/Jg8MsF and email questions to thriveasdstudy@gmail.com. Thank you for considering!

Autism Speaks’ Autism Response Team

National

10 Ways the Autism Response Team Can Help

  1. When You Don’t Know Where to Start: The Autism Response Team (ART) is specially trained to connect people with autism, their families and caregivers to information, tools, and resources.  
  1. Learn the Signs: Are you concerned your child has a developmental delay? Trust your instincts and contact ART to learn how to connect with your local Early Intervention resources.  Early intervention services can make extraordinary differences in your child’s development.
  1. Find Local Services: Do you need help finding local autism service providers in your area? ART can help you learn about the Autism Speaks Resource Guide, our online national database of autism providers and resources searchable by state and zip code. 
  1. Find the Right Tools: Contact ART to learn more about our Family Services Tool Kits! Our Tool Kits provide information, timelines, strategies, and more on many topics relevant to the autism community.  Examples include our 100 Day Tool Kit, School Community Tool Kit, Dental Tool Kit and more!
  1. Newly Diagnosed Children: Learn how to make the best use of the first 100 days after receiving a diagnosis! Families who have a child that has been diagnosed with ASD in the last 6 months can call ART to request a complimentary hard copy of our 100 Day Kit or Asperger Syndrome/HFA Tool Kit. 
  1. Know Your Child’s Rights: Looking for where to start the search for more information on your child’s educational rights? Contact ART to learn more about the rights and entitlements of children with autism.  We will provide resources that will help you prepare for your child’s IEP meeting.
  1. Stay Informed: ART can help you locate a wide variety of autism-related resources listed in Autism Speaks Resource Library.  Contact us for help finding the latest books, articles, websites and so much more!  
  1. Parent Support: Sometimes managing the day-to-day challenges of living with autism is overwhelming and can be isolating! Today, it is estimated that 1 in 68 children is diagnosed with autism in the United States.  Contact ART for help connecting with other families who know what it’s like to “walk in your shoes.” 
  1. Transition to Adulthood: Wondering about how to start planning for your adolescent child’s future?  Contact ART to learn about our Transition Tool Kit that provides options to explore as you and your adolescent with autism begin to plan for adulthood.
  1. Adult Services: Connecting adults with autism to support services, resources and information is a priority for Autism Speaks. Contact ART for more information on local resources for adults with autism, including employment and housing information!

Autism BrainNet: Brain & Tissue Donations for Research

National

Autism BrainNet enables the highest quality and most rigorous research into the causes of autism spectrum disorder and other related neurodevelopmental conditions. The postmortem brain resource generates data that will contribute to the development of preventions and treatments to improve the quality of life of individuals with autism spectrum disorder.


Autism BrainNet works with the autism and other neurodevelopmental research communities, in partnership with the families and communities, to communicate the need for donated brain and other tissue and develop a sensitive, transparent and effective strategy for acquiring and distributing the highest quality tissue for research worldwide.

Treatment Study: Improving Dental Care and Oral Health in Children with ASD

Local

Participation involves:
-4 study visits over 6 months, including 3 dental office visits and 1 visit to UCI
-completion of questionnaires
-some families will also participate in a 10-week intervention at UCI

Families will receive an electric toothbrush and a 6-month supply of tooth brushing materials. Families may receive up to $500 compensation for study participation.

Contact Jackie at (949) 267-0428 or moffittj@uci.edu

UCI Autism Physical Exercise Research Study: Children Ages 6-12 Years Old

Local

We are investigating the effects of physical exercise on anxiety in children with autism spectrum disorder (ASD). Participants will be asked to participate 3 times a week for 8 consecutive weeks in a physical exercise intervention or LEGO/Minecraft therapy. Parents will fill out questionnaires and participants will be asked to provide saliva samples. Up to $60 in gift cards and small prizes will be provided for compensation.

Please see the flyer for additional information.

SPARK – online research partnership for people with autism

Local, National

SPARK is a landmark autism research project aimed to make important progress possible. SPARK stands for “Simons Foundation Powering Autism Research for Knowledge. The mission: “We want to speed up research and advance our understanding of autism to help improve lives. If your child, or someone you know, has a professional diagnosis of autism spectrum disorder learn more by contacting SPARK.” No cost to join.

Autism Emotion and the Family Research Study

Local

This study examines how children’s biologically-based emotional patterns predict strengths and challenges in everyday functioning, and what caregivers can do to help. Looking for children between the ages of 6 and 10 who have been diagnosed with ASD. Participation includes a parent-child laboratory visit at CSUF, and parent completion of questionnaires.

Families will receive $75 for their time.

This study ends April 1, 2018

Dr. Jason Baker and Dr. Rachel Fenning

jbaker@fullerton.edu

657-278-1088

Autism Glass Project

National

The Autism Glass Project seeks to provide a more immediate supplement to therapy by providing a mobile at-home therapeutic learning system, codesigned by children and families with autism, that can integrate seamlessly into their daily lives outside of the clinical setting.

Interested in participating?

We’re looking to recruit children who: ü are between the ages of 6-12 years old, ü have a clinical diagnosis of Autism Spectrum Disorder, ü and receive ABA therapy at least twice per week. Sounds like your child? Here are the next steps…

1. Let your agency know that you are interested in participating.
2. Visit autismglass.stanford.edu to sign up.
3. Complete the Autism Glass screening and eligibility questionnaire at autismglassrecruitment.stanford.edu.
4. Have questions? Email the Autism Glass team at autismglass.stanford.edu or call them at 650-497-9214!

The UC Irvine Family Lab Research Study

Local

The UC Irvine Family Lab is conducting a research study examining participation in adaptive sports teams (designed for children with special needs) and child well-being outcomes in children with Autism Spectrum Disorder.

Families are eligible to participate in this study if:

 Your child has been clinically diagnosed with Autism Spectrum Disorder

 Your child is between the ages of 8 and 11 years old

 Your child is currently enrolled in an organized sports team (i.e., soccer, softball, basketball, football, hockey, etc.) that is adaptive (specially designed for children with special needs)

 The child must NOT be currently enrolled in any martial arts classes

Participation in the study involves:

1) Parent completion of an online questionnaire (~1 hour)

2) Two visits to UC Irvine for diagnostic and social & cognitive assessments of child (~1.5 hours each, separated by ~13 weeks)

3) Continued participation in organized sports team between the two UCI visits

Families will be compensated up to $50 for their participation in the questionnaires and visits to the university

To receive more information, please submit your contact information to our secure online interest form (scan QR code or visit link) and a member of our research team will call you with more information:

Phone: (949) 824-7441

Email: families@uci.edu

For questions, please contact the Lead Researcher:

Janice Phung, M.A. (jnphung@uci.edu); Faculty Sponsor:

Wendy Goldberg, Ph.D.

UCI IRB Approved: 11-24-2015 | APP # 9023 | HS# 2015-2312 1 of 1